Implementation and sustainability of a nationwide surveillance program of a paediatric health condition following international standards
Schedule
02.03.2018
02:00pm to 04:00pm
Location
ISPUP
Description

EXPECTED CONTRIBUTION OF THE SEMINAR TO THE RESEARCH WORK OF STUDENTS IN MASTERS AND PhD PROGRAMES

National surveillance of health conditions are potent instruments to obtain valuable information that contribute for the knowledge of epidemiology of the condition, its clinical presentation and evolution, rational organization of resources (health, education, social services) and advocacy from patient and family associations.

The case-study of the implementation of the Programa de Vigilância Nacional da Paralisia Cerebral aos 5 Anos in Portugal is used to discuss crucial issues as: justification for the surveillance and aims; stockholders, alliances and partnerships; definitions, classifications, tools for assessment, instruments and methods; coverage, reliability and validity; population denominators, indicators; sustainability; dissemination, usefulness of information.

In spite of the specificities of paediatric conditions, the requirements for a useful and successful national surveillance of health conditions are mostly common to other contexts.

 

INTEGRATION OF THE SUBJECT TO BE DISCUSSED IN PUBLIC HEALTH PRACTICE AND/OR RESEARCH

Public health has among its aims to obtain, produce and disseminate better, accurate and up-to-date information on health conditions that have importance for the wellbeing of the population, the organization of health services and the monitor the health of the population. Producing meaningful, prospective health indicators is defiant and requires massive effort. Sharing experiences of success and failure and discussing how threats and hurdles have been faced is a useful way to promote public health practice and research.

 

Note:

The Seminar is free entry. The request of a certificate and / or declaration of attendance must be ordered on the day of the event at the ISPUP Secretariat.

Speakers
Daniel Virella
Affiliation
Unidade de Cuidados Intensivos Neonatais do Hospital Dona Estefânia, Centro Hospitalar de Lisboa Central (CHLC) / Coordenação do Programa de Vigilância Nacional da Paralisia Cerebral aos 5 Anos de Idade (PVNPC5A)

Assistente Hospitalar Graduado de Pediatria, Neonatologista, na UCIN do Hospital Dona Estefânia (CHLC). Coordenador do Colégio de Neonatologia da Ordem dos Médicos. Mestre em Epidemiologia. Responsável pelo Gabinete de Análise Epidemiológica e Estatística do Centro de Investigação do CHLC. Responsável pelo Registo Nacional de Paralisia Cerebral. Vogal da Secção de Epidemiologia da European Society of Paediatric Research. Consultor da DGS.