Biobancos, Investigação e Saúde Pública: Promessas e Desafios

ISBN 978-989-99644-4-0 (Online)

ISBN 978-989-99644-3-3 (Paper)

 

Since the turn of the century, there has been a broad consensus, at least in affluent countries, on the importance of using organised collections of human biological samples and associated data, also known as biobanks, in health and epidemiological research. At the same time, there has also been a strong investment in the promotion of those structures, which are judged as fundamental to the production of innovative knowledge on the processes of health and disease.

 

In Portugal, in spite of the existence of several biobanks and biobank networks in different stages of implementation, the former are still a relatively insipient phenomenon. The public visibility of these structures is small and there is little debate about their complex ethical and social implications, which are not yet fully understood.

 

Considering the above, ISPUP invited, in February 2018, several personalities with diverse knowledge to discuss the state of biobanks in Portugal, the benefits they announce and the multiple challenges they bring. The resulting reflections are included in this publication, which is a result of one of the first, if not the first, public multisdisciplinary discussion about biobanks and what the Portuguese society might expect from them.

 

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